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About

Who made this

If you are going to act on anything here, you are entitled to know where it came from first.

Who compiled it

This library was compiled by a patient's family member. I am not a doctor, not a medical researcher, and have no medical training of any kind.

After the diagnosis in my family, I found almost nothing reliable about anomalous aortic origin of a coronary artery in Chinese, and what research existed was almost entirely in English and unreadable to a layperson. I built this to understand it myself, then published it in case it helps someone else.

How the records were selected

There are 63 deduplicated records covering pediatric and adult studies, imaging and risk stratification, sports participation, surgical management, and expert consensus and clinical guidelines. Each keeps its original title, journal, year, and DOI, PMID, or PMCID where one exists, so you can go back to the source and check.

To be clear: this is not a systematic review. The scope reflects what was found and retained during compilation. It is not exhaustive and does not represent the whole of the evidence. A question with many records is not more important than one with few, and few records does not mean lower risk.

Where the Chinese titles and summaries come from

Every Chinese title and plain-language summary on this site was drafted by AI from the record metadata. The checking is also done by AI, line by line against the full text held here. No medical professional was involved at any stage, and no clinician has reviewed any of this text.

Each summary carries a tag stating how far it was checked: checked against the full text; based on the title and curator note only, because the full text is not held here and no comparison was possible; or drafted and not yet checked.

These tags are not boilerplate. Where a summary conflicts with what your clinician tells you, your clinician is right, and corrections are welcome via GitHub.

What this site cannot do

It cannot tell you whether to have surgery, whether sport is safe, or how high the risk is. Those depend on the specific anatomy, symptoms, and test results, and only a clinician who has seen the imaging can judge them.

It is not a substitute for the articles. Most records are not held here in full, and those that are are English-language clinical papers. A summary only helps you decide whether a paper is worth raising with your clinician.

It is not guaranteed to stay current. The literature was compiled in July 2026; anything published since is absent.

It collects no personal information and has no accounts, comments, or uploads. Please do not put names, medical record numbers, or other health information in a GitHub issue.

How to use it well

Pick the few records closest to your situation, note the DOI or PMID, and take them to the appointment — printed or on your phone — and ask whether the situation they describe resembles yours. Treat it as a list to talk through with a clinician, not as an answer.

This site organises published research to help you talk with your clinician. It does not replace medical diagnosis or advice.